SPADIS – Measuring the Social Participation Among People Living With Chronic Diseases

Research project: PhD​ Maxim Van den broecke

SPADIS – Measuring the Social Participation Among People Living With Chronic Diseases

2022-2026 | VUB-ULB-Sciensano

Summary:

The SPADIS project aims at measuring the social participation (employment, education and social relationships) of people living in Belgium with one of the following chronic diseases: cancer, diabetes, cystic fibrosis, neuromuscular disease, HIV/AIDS. Collaborating ULB, VUB and Sciensano scientists aim to understand the personal and external barriers and facilitators of their social participation and to inform the relevant decision-makers.

The SPADIS project has been designed to build capacity within Sciensano in the field of surveillance of social participation of people living with chronic conditions. The project enriches existing databases with additional information at the individual level, concerning the socioeconomic status and position as well as self-reported outcomes and experience. The 3 main objectives of SPADIS are:

·        to measure the association between functionality and social participation

·        to develop and implement tool(s) for the e-collection of patient-reported outcomes and experience

·        to assess the impact of contextual features, related to the healthcare and social security systems:

o   on the association of functionality and social participation (cfr obj. 1)

o   on the patient-reported outcomes and experience (PREMs and PROMs) (cfr obj. 2).

More information can be found on the project webpage: www.sciensano.be/en/projects/measuring-social-participation-among-people-living-chronic-diseases

Contact the SPADIS-team: spadis@sciensano.be